Joey is back home. We will probably know the results next week.

Hello all,
Thank you for all your well wishes and prayers. Joey is home and is doing fine. As always, when he comes home from a MRI he is a little bit loopy as the anesthesia wears off and his sleep schedule is a bit wonky.  Otherwise he is back to normal. 

All those involved in his treatment (oncology, ophthalmology, surgery etc) get together on Mondays to discuss the children under their care (they call it "tumor board").   We will likely check in and find out more about the results after that.  We will share when we know more.

With love,

Jon, Jane Joey and Nathan

MRI Tomorrow

Dear family and friends,

Joey's MRI has been rescheduled for tomorrow afternoon (2/23/2010). In recent days, Joey has seemed more confident and able to see when his good eye is patched.  This is one more reason for us to hope that we will get a good report from this MRI.   Would you join us in praying that we would get a good report and that the MRI would show signs that the tumor is shrinking?

Now that he has a port (a device inserted below the skin in his chest that helps facilitate the delivery of chemotherapy) the process of sedation is much less  traumatic. The main challenge for tomorrow's procedure is that he cannot eat from midnight tonight until his MRI which is scheduled at 3:00 p.m.  Even though he not a voracious eater, missing breakfast, snack and lunch is a bit of a challenge.

Thank you for your love, prayers, encouragement and your presence in our lives,

Jon, Jane Joey and Nathan 

Quick Update 2.12.2010

Dear friend and family,

I wanted to give you all a quick update on this past week. 

First of all I want to thank all of you who took time to pray for our family this past week and for all your encouraging words. We are so grateful for all of you. I am sorry I haven't been able to respond to each of your emails. Frankly I have been a bit swamped.

Both our boys came down with a flu this week and Joey was therefore unable to get his MRI.  It takes a little while to reschedule but we will let you know when it finally happens, but for now we don't have any news.  Still we are praying that the tumor would shrink and our boys would continue to grow.

We made it through this week with the help of Jane's mom and sister, who came up for the week, and with my mother coming out to help today.  I have mostly been swamped supporting Graceful Tools and and trying to bring to life more Roos for Todoroo.  Graceful Tools has started to produce a little bit of revenue which is helpful, since for the past 7 months Jane has been the sole bread winner for our family.  I have convinced her that starting a company or two is a lot cheaper that business school but I am not sure how much longer that line will work!

Todoroo, and our Android task manager (Astrid) has been getting some good press recently. We have been featured in publicity by T-Mobile, Sprint and Verizon and was recently featured at www.killerstartups.com. I am not sure how much the last reference means but it was fun to be considered a killer start-up. I will continue to keep you posted on this and the various goings on of the Paris family.

Thank you for all your love and support,

Jon, Jane, Joey and Nathan 

Family Update 2.7.2010

Dear friends and family,
 
Numerous times during this past week I thought about blogging or taking pictures to capture the misery our family was in, but luckily for you I didn't.  Whatever I sent would have been little more than just a long whine--a creative, sarcastic and self-aware whine, but a whine nonetheless.  Given the plight of so many in country and through out the rest of the world it is difficult for an overfed, employed, insured, happily-married father of two to make a strong case that his self pity is warranted! 
 
Here is the short version:  Jane and I both were fairly sick (high fever, sore throat, ache... swine flu?) during which our landlord was renovating the apartment to prepare the place for sale. Our shower was out for over a day, our kitchen floor was missing for most of the week and our refrigerator was living in the middle of our living room - in the midst of this the realtor was periodically walking people through the apartment.  From our La-Z-Boy clutching Tylenol in one hand and an ear thermometer in the other I would greet those how might become our new landlord and offer them hand sanitizer. Good times.
 
Gladly our fevers broke, we have a new kitchen floor and I was able to restore our phone/dsl (which was taken out during construction) by doing some creative wiring in our garage.  My mother and sister- in-law are in town and we are looking forward to celebrating our second son, Nathan's 2nd birthday this week.  We are also praying that we get a good report from Joey's upcoming MRI (on Tuesday).
 
The main thing I've wanted to share about was a rich conversation I had with Joey recently. He continues to be a bundle of energy, whether he is taunting his brother or on the brink of defeating bad guys in an imaginary battle. He is also more interested in learning and is starting to practice reading, writing, counting and doing math (mostly with his money as he is saving up for his next Lego purchase) and is also becoming interested in learning Mandarin.   In the midst of all of this, his more spiritual side is also starting to come out.   Last Sunday I again asked him if he would like to take communion and he said he would. He walked up with me, grabbed the wafer and dipped it himself. 
 
We talked about what it means that Jesus took responsibility for us so that we could be forgiven.  We discussed the symbol of taking Jesus' life into ourselves as he took our death into himself.   He seems to get it.

Many of our rich conversations have happened on our 15-minute morning bike rides to his pre-school.  
During a recent ride he said out of the blue, "I love riding bikes with you."
"What do you like about it Joey?" 
 
"I like talking about things."

"What do you like talking about?" 

"I like to talk about, Jesus and cars and bikes."

"I like to talk about these things too." 

Our conversions about cars often start with some history (Henry Ford, interchangeable parts, the affordability of the automobile and, of course, streets covered with horse poop).   Joey loves the irony that we thought we were rescuing the world from streets covered with horse poop but instead has filled the air with car poop (green house gases etc).  Maybe the irony is more for me, but he at least likes talking about poop.  

Our conversations about bikes usually involve a fair and balanced appraisal of the relative merits of bicycle vs. automobile transportation but usually come to the clear conclusion that the bicycle is vastly superior.

Our conversations about Jesus have also had a similar mixture of the humorous and profound.
 A few weeks ago he came to me and said, "we are never going to die, right daddy?"

Talking to your 4 year-old son with a brain tumor about the inevitably of death is both precious and terrifying.   

I respond, "No Joey, we are going to die, everybody dies, even Jesus died."

"Oh..." he says. 

"But hopefully that will be a long time from now and just like God brought Jesus back to life, he will bring us back to life."

"Who is going to take us out of the ground?"

"God is going to give us new bodies Joey and I am not sure if they are going to come out of the ground or not."

"In Sunday school we learned that Jesus walked through walls."

"Yes Joey I heard that too, I am not sure if we will walk through walls but our new bodies will be very cool I am sure. When God makes things new there will be no more crying, and no more bad dreams, no more sickness and no more dying."

"And no more wars?" He asks.

"That is right Joey and no more wars.  God will make everything right again... That will be a good day."

He then runs off to simulate a war with his buddies at school, I guess he wants to get some more battles in while there is still time. 
 
Overall this past week hasn't been too bad. In many ways being sick is good for me.  When I am not sleeping or whining or watching Hulu I end up praying... praying that God's kingdom will come, and His will, will be done here on earth just like in heaven.   We are grateful for good medical insurance, great hospitals and fantastic doctors but we long for the day when these will no longer be necessary.

Please join us in praying this coming week for a good result for Joey's MRI (Tuesday) and for Nathan as he turns 2.  

With Love,
Jane, Jon, Joey and Nathan

Attached Photos: 
Nathan with one of his makeshift hats
Jane, boys and Great Grandma and Grandpa Paris in Oceanside, CA