Good News

Dear friends and family,

We have great news and reason for celebration!  The latest MRI showed that Joey's tumor is smaller. The nurse practitioner sent a quick email today saying:

"
Tumor is smaller with less enhancement.
We are very happy with the study."

Jane will learn more at Joey's chemotherapy session this Thursday.

It goes without saying that we are grateful.  Grateful for the wonderful treatment Joey is receiving, for the support of friends and family like you who have been with us on this journey (families from our church have been providing meals for us  while Joey is in Chemo which has been especially nice :) and we are grateful to God for his rich mercy.

In other news, we learned that Joey wasn't selected (by lottery) for either the Mandarin or Spanish immersion programs for kindergarten.  Joey is happy since he wanted to go to a "school where they speak only English."  Jane and I both wanted to try for the immersion programs but are glad Joey will be going to our local school.  This Sunday we biked as a family to the school (Joey on his own bike!) and had a fun time playing on the play structures. The kids had fun too.

With Love,
Jon, Jane, Joey and Nathan 

Joey is back home. We will probably know the results next week.

Hello all,
Thank you for all your well wishes and prayers. Joey is home and is doing fine. As always, when he comes home from a MRI he is a little bit loopy as the anesthesia wears off and his sleep schedule is a bit wonky.  Otherwise he is back to normal. 

All those involved in his treatment (oncology, ophthalmology, surgery etc) get together on Mondays to discuss the children under their care (they call it "tumor board").   We will likely check in and find out more about the results after that.  We will share when we know more.

With love,

Jon, Jane Joey and Nathan

MRI Tomorrow

Dear family and friends,

Joey's MRI has been rescheduled for tomorrow afternoon (2/23/2010). In recent days, Joey has seemed more confident and able to see when his good eye is patched.  This is one more reason for us to hope that we will get a good report from this MRI.   Would you join us in praying that we would get a good report and that the MRI would show signs that the tumor is shrinking?

Now that he has a port (a device inserted below the skin in his chest that helps facilitate the delivery of chemotherapy) the process of sedation is much less  traumatic. The main challenge for tomorrow's procedure is that he cannot eat from midnight tonight until his MRI which is scheduled at 3:00 p.m.  Even though he not a voracious eater, missing breakfast, snack and lunch is a bit of a challenge.

Thank you for your love, prayers, encouragement and your presence in our lives,

Jon, Jane Joey and Nathan 

Quick Update 2.12.2010

Dear friend and family,

I wanted to give you all a quick update on this past week. 

First of all I want to thank all of you who took time to pray for our family this past week and for all your encouraging words. We are so grateful for all of you. I am sorry I haven't been able to respond to each of your emails. Frankly I have been a bit swamped.

Both our boys came down with a flu this week and Joey was therefore unable to get his MRI.  It takes a little while to reschedule but we will let you know when it finally happens, but for now we don't have any news.  Still we are praying that the tumor would shrink and our boys would continue to grow.

We made it through this week with the help of Jane's mom and sister, who came up for the week, and with my mother coming out to help today.  I have mostly been swamped supporting Graceful Tools and and trying to bring to life more Roos for Todoroo.  Graceful Tools has started to produce a little bit of revenue which is helpful, since for the past 7 months Jane has been the sole bread winner for our family.  I have convinced her that starting a company or two is a lot cheaper that business school but I am not sure how much longer that line will work!

Todoroo, and our Android task manager (Astrid) has been getting some good press recently. We have been featured in publicity by T-Mobile, Sprint and Verizon and was recently featured at www.killerstartups.com. I am not sure how much the last reference means but it was fun to be considered a killer start-up. I will continue to keep you posted on this and the various goings on of the Paris family.

Thank you for all your love and support,

Jon, Jane, Joey and Nathan 

Family Update 2.7.2010

Dear friends and family,
 
Numerous times during this past week I thought about blogging or taking pictures to capture the misery our family was in, but luckily for you I didn't.  Whatever I sent would have been little more than just a long whine--a creative, sarcastic and self-aware whine, but a whine nonetheless.  Given the plight of so many in country and through out the rest of the world it is difficult for an overfed, employed, insured, happily-married father of two to make a strong case that his self pity is warranted! 
 
Here is the short version:  Jane and I both were fairly sick (high fever, sore throat, ache... swine flu?) during which our landlord was renovating the apartment to prepare the place for sale. Our shower was out for over a day, our kitchen floor was missing for most of the week and our refrigerator was living in the middle of our living room - in the midst of this the realtor was periodically walking people through the apartment.  From our La-Z-Boy clutching Tylenol in one hand and an ear thermometer in the other I would greet those how might become our new landlord and offer them hand sanitizer. Good times.
 
Gladly our fevers broke, we have a new kitchen floor and I was able to restore our phone/dsl (which was taken out during construction) by doing some creative wiring in our garage.  My mother and sister- in-law are in town and we are looking forward to celebrating our second son, Nathan's 2nd birthday this week.  We are also praying that we get a good report from Joey's upcoming MRI (on Tuesday).
 
The main thing I've wanted to share about was a rich conversation I had with Joey recently. He continues to be a bundle of energy, whether he is taunting his brother or on the brink of defeating bad guys in an imaginary battle. He is also more interested in learning and is starting to practice reading, writing, counting and doing math (mostly with his money as he is saving up for his next Lego purchase) and is also becoming interested in learning Mandarin.   In the midst of all of this, his more spiritual side is also starting to come out.   Last Sunday I again asked him if he would like to take communion and he said he would. He walked up with me, grabbed the wafer and dipped it himself. 
 
We talked about what it means that Jesus took responsibility for us so that we could be forgiven.  We discussed the symbol of taking Jesus' life into ourselves as he took our death into himself.   He seems to get it.

Many of our rich conversations have happened on our 15-minute morning bike rides to his pre-school.  
During a recent ride he said out of the blue, "I love riding bikes with you."
"What do you like about it Joey?" 
 
"I like talking about things."

"What do you like talking about?" 

"I like to talk about, Jesus and cars and bikes."

"I like to talk about these things too." 

Our conversions about cars often start with some history (Henry Ford, interchangeable parts, the affordability of the automobile and, of course, streets covered with horse poop).   Joey loves the irony that we thought we were rescuing the world from streets covered with horse poop but instead has filled the air with car poop (green house gases etc).  Maybe the irony is more for me, but he at least likes talking about poop.  

Our conversations about bikes usually involve a fair and balanced appraisal of the relative merits of bicycle vs. automobile transportation but usually come to the clear conclusion that the bicycle is vastly superior.

Our conversations about Jesus have also had a similar mixture of the humorous and profound.
 A few weeks ago he came to me and said, "we are never going to die, right daddy?"

Talking to your 4 year-old son with a brain tumor about the inevitably of death is both precious and terrifying.   

I respond, "No Joey, we are going to die, everybody dies, even Jesus died."

"Oh..." he says. 

"But hopefully that will be a long time from now and just like God brought Jesus back to life, he will bring us back to life."

"Who is going to take us out of the ground?"

"God is going to give us new bodies Joey and I am not sure if they are going to come out of the ground or not."

"In Sunday school we learned that Jesus walked through walls."

"Yes Joey I heard that too, I am not sure if we will walk through walls but our new bodies will be very cool I am sure. When God makes things new there will be no more crying, and no more bad dreams, no more sickness and no more dying."

"And no more wars?" He asks.

"That is right Joey and no more wars.  God will make everything right again... That will be a good day."

He then runs off to simulate a war with his buddies at school, I guess he wants to get some more battles in while there is still time. 
 
Overall this past week hasn't been too bad. In many ways being sick is good for me.  When I am not sleeping or whining or watching Hulu I end up praying... praying that God's kingdom will come, and His will, will be done here on earth just like in heaven.   We are grateful for good medical insurance, great hospitals and fantastic doctors but we long for the day when these will no longer be necessary.

Please join us in praying this coming week for a good result for Joey's MRI (Tuesday) and for Nathan as he turns 2.  

With Love,
Jane, Jon, Joey and Nathan

Attached Photos: 
Nathan with one of his makeshift hats
Jane, boys and Great Grandma and Grandpa Paris in Oceanside, CA

Back Home

Hello all,
Joey and I got back at around 4:30 today. Nathan seems to be doing well and Jane's fever broke this evening (hopefully for good).

Thank you for all your love and prayers,

Jon

Ups and Downs

Dear friends and family,

Our life reminds me a bit of the opening line of A Tale of Two Cities... in some areas of our life it really is the best of times and in other areas it is pretty tough. When I think about all that is going well (which I like to do!) I get excited, wax eloquently (or at least rapidly) about all that is going on and my hopes for how it might turn out. On the other hand when my attention turns to some of the short term and longer term challenges we are facing I become more sober and my focus necessarily narrows on the important issues right before us. My prayers alternate form gratitude to intercession, from "more Lord!" to "Lord, have mercy".

So what do you want to read about first? In order to not sound completely superficial by the end I will start with the good stuff.

For me, business is looking very promising. I was recently contacted a phone manufacture and some wireless carriers about pre-installing of one of our applications on their phones. We have sent them our terms and are awaiting a reply. We are obviously praying for the best but are happy to simply have been considered.

Our newest application, Todoroo, made it to the second round of the Android Developers Challenge. There are 200 applications in this round and 30 of them will win a cash prize and get some free publicity from the award. This would be huge for us. Not only would the infusion of cash be helpful for our company, the award would help validate what we have been doing. You might be wondering what Todoroo is since it isn't released publicly and our website isn't up. Below is a fun description that captures both the idea and some of the excitement I have about it.



Todoroo is a solution for the nagging spouse, a secret weapon against evil advertising geniuses and a cure for the common cold all on your phone!


How? Todoroo populates your phone with a team of mobile mentors (we call them Roos) who know you are forgetful, lazy and easily distracted. They help by supercharging your to-do list with the wisdom of coaches, experts and friends and provide creative nudges to keep you moving in the right direction.


Current coaches include a piano teacher, money saving adviser, and a relationship guru. Our 'Paranoid Roo' (under development) will help you avoid getting sick… and yes help you avoid the common cold! Maybe a cure is an overstatement but you get the idea.


We are opening our platform up and reaching out to publishers, authors and folks like you to bring the world a wide range of mobile mentors. The possibilities are endless.



I could go on and on... about some of the content from world class authors that we are bringing into our platform and our plans to serve delegates of the Urbana Missions Convention but it is getting late, the email is getting long and you are wondering what challenges we are facing.


The challenges

The most pressing challenge we face is Jane, Joey and Nathan have all been really sick for the last few days. Joey missed school during the end of last week and will probably stay home through Wednesday. Jane came home sick from work on Friday and has had a fever throughout the weekend. Nathan joined the club on Sunday and continues to be miserable. For some reason I have been spared thus far. As a result we spend most of the weekend camped out in our smallish apartment watching Hulu.com, Pixar and Bob the Builder and driving each other a little crazy. As you can probably tell the pressing challenges we are facing are not all uncommon ones, and for the most part we are hanging in there.


If you have been reading our email updates/blog posts you know that Joey's tumor has grown in recent months. Today he starts his second round of chemotherapy. He is such a trooper. In recent days he has begun to talk more about God and we have caught him singing a worship song that he is making up as he goes. From time to time he observes matter-of-factly that one day Jesus will fix what is broken and bring to life what has died. In moments like these Jane and I often catch one-another's gaze and share a knowing look that we both long for that day to come quickly.


Joey's sometimes silly songs remind me that even in the best of times they are not as good as one day they will be. And in the most difficult times we join our son in putting our trust in Him who has suffered with and for us.


Thank you for joining us in this journey.


With Love,

Jon, Jane, Joey and Nathan Paris